Description
The 3rd Rare Diseases Run, will take place from 26th February – 3rd March 2024. It is a virtual and inclusive sports event for everyone. No matter if you walk, run or roll. Choose your distance, your pace and your favorite route. Run to create awareness for your own rare disease or run to support other rare diseases. Choose your running package starting with the online option for 10€ only. Up to a premium package with a medal and shirt. Every package and every participant will contribute to a donation pot that will be shared amongst 22 patient organizations from 3 different countries representing different rare diseases to support their work.
Syngap Elternhilfe e.V.
5p-minus-Syndrom e.V.
Angelman e.V.
Arbeitskreis Cornelia de Lange-Syndrom e.V.
CDKL5 Deutschland e.V.
CRPS Netzwerk gemeinsam stark. e.V.
Dravet-Syndrom e.V.
DSCM e.V.
Dup15q e.V.
Fett-SOS e.V.
Hand in Hand gegen Tay-Sachs und Sandhoff in Deutschland e.V.
KAT6A Foundation Austria
Lupus Erythematodes Selbsthilfegemeinschaft e.V.
Morbus Fabry Selbsthilfegruppe e.V.
Noonan-Syndrom Schweiz
SCN2A Germany e.V.
Selbsthilfe EPP e.V.
Sirius e.V.
SSADH Defizit e.V.
STXBP1 e.V.
Tuberöse Sklerose Deutschland e.V.
ZNM – Zusammen Stark! e.V.
There are special offers for companies and schools to participate as a team. For schools the patient organizations are preparing information boxes which contain books, brochures, easy recipes, small experiments and visual material about rare diseases, disabilities and inclusion. The boxes can be borrowed by schools for free to be used during school projects.
The Rare Diseases Run 2024 will be supported by several athletes and celebreties. The patron of the RDR is Member of the German Parliament Erich Irlstorfer
Note: For subscription in English go via https://my.raceresult.com/255143/registration
The last RARE DISEASES RUN had nearly 3,000 participants and collected over 32,000 € in donations. This event was the biggest virtual run in Europe for rare diseases.
Images
