Description
In celebration of the upcoming rare disease day, the Glycoimmunology Lab from UCIBIO NOVA is organizing an open event entitled “Rare Diseases: Improving knowledge to support patients, families and researchers“.
This session aims to highlight the work of patient organizations in rare diseases, as well as the possibility of collaboration between these organizations and different research groups, such as the Glycoimmunology group, supported by National (RD Portugal) and European organizations (e.g., EURORDIS).
The session will be in digital format at 12:00 (PT time) on February 28th, with a maximum duration of 1 hour.
ZOOM
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RD-Portugal: Supporting Rare Diseases Across Portugal
Catarina Costa Duarte, Vice President RD-Portugal
EURORDIS role in the European Reference Networks: Supporting Patient Partnerships
Rita Francisco, EURORDIS – Patient Engagement Junior Manager
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