Description
This year campaign is continuing our activities initiated in 2013 and will make more visible the AGU and AJC contribution and efforts to increase awareness of rare disorders at the professional and society level. This year campaign will focus on:
• Press Releases in Arabic and English Newspapers.
• Informative data posted in RDD team Social Media accounts.
• Rare disease day team TV and Radio interviews.
• Rare disease day team school awareness workshops.
• Rare disease day team Arabian Gulf University Medical students’ awareness booth.
• Public Awareness Campaign booth in the Avenues Mall- Bahrain 24 Feb 2024 and Bahrain City Center mall 29 Feb 2024.
• Care for Rare support group webinar 22 Feb 2024.
The public awareness campaign on date 24 and 29 Feb 2024, has as goal to interact with the society in order to increase the awareness about the rare diseases people, the latest science achievements toward better treatments and about how society can contribute to improve the life quality of the patients and of their families.
Care for Rare support group will have an evening for rare disorders patients and families, entitled “Supporting Families” on date 22 Feb 2024, to learn from the difficult and long journey of rare disorders and to offer support and guidance for day-by-day life.
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