Description
Orphan Products for Rare Diseases: Availability and Accessibility – They’re Not The Same Thing
The program will feature two keynote speakers and a panel discussion. The first keynoter, Dr. David Fajgenbaum, will address the issue of availability of orphan products. The second speaker, Dr. Dave McLean, will discuss the issue of accessibility of orphan products. A panel with additional speakers will close out the program. In addition to the formal program, we will host a breakfast session for representatives of patient advocacy organizations that will feature Dr. Sue Berry, Chair of the University of Minnesota/M Health Fairview Rare Disease Center of Excellence.