Description
We are inviting everyone to a webinar to be held on 25 February 2021 (Thursday, 4:00 PM) in observance of National Rare Disease Week. #CareForRarePH #NRDW2021
With the theme "Puhon: Progress and Perspectives in Caring for the Filipino Rare", the webinar aims to provide an overview on what is a rare disease, local and international policies, and updates from DOH and PhilHealth. It will also present the experiences of a parent-advocate on living with a child with a rare disease.
Puhon is a Visayan word which means hopefully or God-willing.
The webinar is organized by
University of the Philippines Manila
Institute of Human Genetics - NIH
Department of Health (Philippines)
National Council on Disability Affairs (Government)
Philippine Society for Orphan Disorders Incorporated
Philippine Pediatric Society, Inc. (Section of Genetics)
Volunteer Youth Leaders for Health - Philippines
REGISTER AT
https://up-edu.zoom.us/webinar/register/WN_UaRWd5KrRRWdspzWstkuUA
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