Press Conference to launch Rare Diseases Campaign in Malta

The ceremony was held under the Patronage of The Speaker of The House, Dr Angelo Farrugia, in collaboration with the National Alliance for Rare Diseases Support Malta.

In a message to commemorate this event, EURORDIS CEO, Mr Yann Le Cam, praised the work of RDM in creating awareness in Malta and supporting rare disease patients and their families. He also praised the crucial role RDM played in helping the cause on a European and International level and especially the work carried out at the ECOSOC Committee of the United Nations so that the resolution ensuring that people living with a rare disease around the world are not left behind and marginalised in society.

Michelle Muscat, Founder and President of RDM, said that the Alliance will continue to strive for equal rights for both rare disease patients and undiagnosed patients and their families in Malta, and will continue to advocate for a National Action Plan for all Rare Disease Patients.