Ohrid will shine for 28 days to support rare diseases


1 February 2023 to 28 February 2023
Makedonski prosvetiteli bb, Ohrid, North Macedonia


Samuil’s Fortress, Ohrid Gymnasium OSU “St. Kliment Ohrid OEMUC “St. Naum Ohridski” SOSU “St. Cyril and Methodius” all elementary schools, as well as local and national buildings and monuments., in the center of the city ,”St. Cyril and Methodius” St. Kliment Ohridski “…

– These are just some of the locations that shined in support of the RARE, as part of the campaign “Learning about rare diseases 2023”, which this year has its fifth edition in a row.

– This year for Rare Disease Day 2023, we are calling on everyone to help the rare disease community unite with a chain of lights around the world. As every year, this year we are joining the EURORDIS global call to illuminate local and national buildings and monuments.

This chain of illuminated objects will serve as one of the symbolic ways to break the isolation on a global scale. We invite you to join us, illuminate an object or give us your suggestion for the illumination of a building, monument, etc. More illuminated local and national buildings and monuments reinforce the international influence.

At the beginning of the month of February, the start of the “Learning about Rare Diseases” campaign was marked, which this year marks the fifth season dedicated to the health workers who, for the past 5 years, have made a great contribution to this national campaign, which is more than successful.
With 28 new rare diagnoses in audio, video and text form, in the month with the fewest days in the year, in the month that patients with rare diseases call “theirs”, the month that is rare for its rare 28 days, and this year we will try to get to know you more closely about rare diseases

With respect
President of the Society for Rare Diseases IT IS RARE TO BE RARE
Gordana Loleska

video https://www.youtube.com/watch?v=Bd3VYLImE0Y