North South Rare Disease Day Celebration
On behalf of Rare Diseases Ireland (RDI) and Northern Ireland Rare Disease Partnership (NIRDP), we would like to invite you to join us at the annual North-South Rare Disease Day virtual celebration on Tuesday 28th February from 130pm to 3pm being screened from the Long Gallery, Parliament Buildings, NI Assembly.
The event is being sponsored by All-Party Group on Rare Disease MLA’s Mark H Durkan, and Deborah Erskine with support from the Department of Health.
The presentations at the Virtual event will provide:
-An Update on rare disease policies and plans on the island of Ireland
-Overview of political All-Party Groups on rare diseases
-Review of the work of RDI and NIRDP
The virtual event will close with the launch and first public viewing of a short film from the NIRDP Rare Stories project. The film gives a snap shot of the real life stories of people in the NI rare disease community recorded over 2022 by filmographer/producer Andrew McCombe on behalf of NIRDP, supported by esc films with funding from the Rank Foundation.
Register in advance for this webinar:
After registering, you will receive a confirmation email containing information about joining the webinar.