Description
Interdisciplinary conference on rare diseases,
Friday, 9 February 2024, 9.30 – 12.30 in Lucca, San Micheletto Complex:
RARE DISEASES – THE LEGISLATIVE FRAMEWORK AND GOOD PRACTICES IN THE MANAGEMENT OF RARE PATIENTS
We bring together experts in managing rare patients, various professionals in the sector and regional and local authorities, affected patients and their families, but also the general public who wish to know the problems we are dealing with.
We work with dedication in the hope of having more equity in treatment and care and improving the quality of our lives.