Improving care for rare disease patients in Europe – Rare Disease Day 2021

Description

The European Reference Network for Rare Neurological Diseases (ERN-RND) is pleased to invite you to attend the webinar  on "Improving care for rare disease patients in Europe – Rare Disease Day" which will take place on Tuesday 23 February 2021, 3-4pm CET.

Confirmed speakers:

• Holm Graessner, coordinator of the European Reference Network for Rare Neurological Diseases (ERN-RND)
• Donna Walsh, executive director of the European Federation of Neurological Associations (EFNA)
• Sophie Bernichtein, project manager of BRAIN-TEAM in France

• Tobias Mentzel, patient advocate at ELA Germany
• Maria Judit Molnar, Professor of Neurology and director of Semmelweis University’s Institute of Genomic Medicine and Rare Disorders, Hungary

You can sign up here.

We will be discussing the care of rare disease patients in Europe, focusing on rare neurological diseases, and providing different perspectives: from the clinician to the patient's perspective and from a European level to a more local one with examples from France, Germany and Hungary.