Description
The IFCR is putting together a CDKL5 awareness video that will be released on Rare Disease Day across our social media (we are now on TikTok! @ifcr_cdkl5) as well as on our YouTube channel.
We’d love to have photos of as many kiddos as possible to include in our video!
Any photo works, but if you’d like to show your CDKL5 rare pride by dressing in CDKL5 green, epilepsy purple, or CDKL5 rare gear, please do!
Please sign our photo release form and upload your photo here: https://www.dropbox.com/request/wktL0VKaDHtGgoI3OEl7
(photos due Feb 20)
Hope | Love | Cure CDKL5 Deficiency Disorder
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