Rare Disease Awareness and Advocacy Campaign dedicated to Rare Disease Day
21 February 2021 - 06 March 2021
104 Paliashvili str., Tbilisi, Georgia
Hosted by Georgian Foundation for Genetic and Rare Diseases (GeRaD)
The Georgian Foundation for Genetic and Rare Diseases (GeRaD) conducted a wide campaign in social media, TV and radio to once again attract the attention of civil society to the problems related with rare diseases (we are so proud to say that this campaign was very fruitful and successful). In this regard, we created some videos with the participation of the national healthcare decision makers, famous medical professionals as well as patients. Also, a Facebook page dedicated to the Rare Disease Day in Georgia contained up-to-date information regarding this day was prepared. We are happy that a lot of Georgian patients affected with rare diseases and their parents were able to share their problems through this page. This information is very valuable for us to develop an optimal strategy on advocacy to improve access to rare disease treatments in the coming years.