Event

23 Feb 2019
When:
Sat 23 February, 2019
Location
Snow Valley Ski Resort - 2632 Vespra Valley Road
Minesing
Canada
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Canada

MiaThrives Snow Day 23 February 2019 Snow Valley Ski Resort - 2632 Vespra Valley Road, Minesing, Canada
Hosted by MiaThrives

MiaThrives celebrated Rare Disease Day on Saturday February 23rd, 2019 at Snow Valley Ski Resort in Ontario’s cottage country. Over 125 participants gathered to honour Butterfly Children—children with the rare skin disease Epidermolysis Bullosa (EB). They are called Butterfly Children as their skin can be as fragile as the wings of a butterfly. Mia of MiaThrives is a four year old beautiful little girl with DDEB and is the third generation in her family to have EB. Her parents founded MiaThrives in an effort to help bring awareness to Butterfly Children and to help support families affected by EB. You can help support our cause by checking out our website and donating online at www.miathrives.ca 

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