5th Annual Rare Disease Day Event

Hosted by Laura Holman / Rare Disease Advocate

24 February 2024
1800 East Beltline Avenue, SE, Grand Rapids, MI 49546, United States


Calvin University, Corewell Health/Helen DeVos Children’s Hospital, MSU College of Human Medicine and Van Andel Institute will host its 5th annual Rare Disease Day Saturday, February 24, 2024, from 9 a.m. to 4 p.m., at the Prince Conference Center on Calvin University’s campus.

This free event will bring together people with rare diseases, caregivers and families, medical professionals, researchers, advocates and students to share knowledge and experiences, while encouraging and supporting one another.

The theme for this year’s gathering is Family Odyssey: From Diagnosis to Research to Treatment. Keynote speakers will discuss advances in genetic testing and treatment that have changed the rare disease landscape. Breakout sessions will provide opportunities for attendees to learn more about genetic testing, discover ways to support siblings of children with a rare diagnosis, learn strategies for coping with stress, connect with adults living with a rare disease, and explore rare disease-focused careers.

The event will include lunch. In addition to hearing from keynote speakers and attending breakout sessions, participants will have the opportunity to engage with one another and visit information tables hosted by various advocacy and service organizations.

Register for the event at this link: https://forms.gle/WrG8z37Wu28EjZ749

You can also follow the Rare Disease Network on Facebook (@RareDiseaseNetwork) and Instagram (@rare_disease_network).

Event details

24 February 2024
1800 East Beltline Avenue, SE, Grand Rapids, MI 49546, United States
Contact host