Description
The patient organization “95” Rare Alliance Greece has among its objectives the Education and Empowerment of patients with Rare Diseases, and also raising awareness of rare diseases among the general public. In order to take full advantage of the upcoming Rare Disease Day (RDD) on 28th February, our organization has programmed a series of events.
These include the following: organization of a photographic competition entitled “Rarity captured by a camera click”; a proposal to illuminate a building in RDD colours; coordination of the #UHC4RareDiseases campaign, involving 15 national Rare Disease associations in Greece; the 1st International Conference on Rare Diseases which will take place virtually on March 1 and 2, 2021 in Athens, Greece.
The Conference, with the special theme: “Building a Pathway from Diagnosis to Access”, aspires to bring together patient representatives, policy makers, clinicians, researchers, industry representatives and regulators to exchange invaluable knowledge with the aim of enhancing dialogue and promoting policy changes to help build a better pathway from Diagnosis to Access for Rare Diseases.
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