NATIONAL ALLIANCE

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Genetic Alliance UK

United Kingdom


Rare Disease Day in United Kingdom


The United Kingdom has engaged in Rare Disease Day since its beginning in 2008. Taking a political approach, many patient organisations have held receptions and debates focused on rare disease policy in local and national parliaments. In previous years, celebrations have spanned up to 13 cities with conferences, family days and a fundraising dinner.

The UK held a vast number of events in 2020 aimed at raising awareness for rare diseases. Ranging from its first ‘Rare’ film festival to a drug repurposing conference to a traditional british tea party and gala dinner. Inclusive efforts were seen across the country providing activities for all members of the rare disease community. Genetic Alliance UK held receptions in cities in Scotland, Wales and England to spread important messages to the community.

You can also get involved! Do you know of any events not listed here? Email us at [email protected].



NATIONAL ALLIANCE

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Genetic Alliance UK

FRIENDS IN United Kingdom

Events in United Kingdom


Rare Disease Day at Royal Holloway 2021 image
Rare Disease Day at Royal Holloway 2021

On Friday 26 February 2021 we will run a virtual event directed to secondary school years 10, 11 and 12. We will very much...

26 Feb 2021

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Rare Disease Day Holyrood Reception image
Rare Disease Day Holyrood Reception

Join Rare Disease UK for our annual Rare Disease Day reception at the Scottish Parliament Building. Speakers include: -...

04 Mar 2020 - Edinburgh

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Red, Scarlet, Crimson The History of Colour in Art image
Red, Scarlet, Crimson The History of Colour in Art

The Advocacy of Neuroacanthocytosis Patients is please to host a museum tour on 29 February 2020 at the V & A Museum...

29 Feb 2020 - London

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Mission: Possible image
Mission: Possible

Please join us for a very special evening of dinner and dancing at the Mission: Possible Gala, raising funds for Rare Dementia...

29 Feb 2020 - London

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Cambridge Rare Disease Network's RARE-i-Tea Party image
Cambridge Rare Disease Network's RARE-i-Tea Party

Cambridge Rare Disease Network (CRDN) invite you to join us for tea and cakes in celebration of this year's extra rare Rare...

29 Feb 2020 - Cambridge

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RARE/D LIVE image
RARE/D LIVE

THE WHITWORTH GROUPThe Whitworth Group is an interdisciplinary group who regularly meet at the Whitworth Gallery and who...

29 Feb 2020 - Manchester

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Genetics Matters image
Genetics Matters

Genetics Matters is an afternoon celebrating rare disease research in Newcastle. It is a combination of lay lectures and...

29 Feb 2020 - Newcastle upon tyne

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ADSHG Twitter Chat - Parents and Carers image
ADSHG Twitter Chat - Parents and Carers

We hope you'll be able to join us for this gathering of our usual group of experts and people with Addison's for Q&A's...

29 Feb 2020 - Twitter

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Joint North/South Rare Disease Day Conference image
Joint North/South Rare Disease Day Conference

Let's "Reframe Rare"! Come along to find out what progress has been made; to learn what is going on; and to shape what happens...

28 Feb 2020 - Belfast

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JOINT NORTH SOUTH RARE DISEASE DAY CONFERENCE image
JOINT NORTH SOUTH RARE DISEASE DAY CONFERENCE

Let's "Reframe Rare"! Come along to find out what progress has been made; to learn what is going on; and to shape what happens...

28 Feb 2020 - Belfast

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Show your rare! image
Show your rare!

Hands on activities from 11am-1pm to celebrate Rare Disease Day including :Design your genetic family tree, make a bracelet...

28 Feb 2020 - London

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Rare Disease Day at Royal Holloway image
Rare Disease Day at Royal Holloway

Royal Holloway celebrated our 10th annual Rare Disease Day. Thank you to all who joined us to celebrate this special day,...

26 Feb 2020 - Egham

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Adenomyosis Awareness 2020 - Rare Disease Day image
Adenomyosis Awareness 2020 - Rare Disease Day

This year for the worldwide Rare Disease Day 2020 the Adenomyosis Advice Association are keeping it simple.  We are asking...

26 Feb 2020 - London & worldwide

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Rare Disease Day Westminster Reception image
Rare Disease Day Westminster Reception

Date: Wednesday 26 February 2020 Time: 12.15 - 12.45  Join Rare Disease UK for our annual Rare Disease Day Westminster Reception. Speakers...

26 Feb 2020 - London

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Rare Disease Day Senedd Reception image
Rare Disease Day Senedd Reception

Join Rare Disease UK for our annual Rare Disease Day reception at the Senedd. Speakers include: – Angela Burns AM, Chair...

25 Feb 2020 - Cardiff

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Drug Repurposing for Rare Diseases image
Drug Repurposing for Rare Diseases

Findacure's Drug Repurposing for Rare Diseases Conference is returning for its seventh consecutive year!Developing drugs...

24 Feb 2020 - London

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Rare Disease Day 2020- Awareness Stand image
Rare Disease Day 2020- Awareness Stand

The Office for Rare Conditions will be in the atrium of the Royal Hospital for Children, Glasgow, from Monday 24th Feb- Friday...

24 Feb 2020 - 28 Feb 2020 - Glasgow

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Rare Film Festival image
Rare Film Festival

Rare Disease UK is hosting the UK’s first ever film festival that is dedicated to raising awareness of rare diseases. We...

10 Feb 2020 - London

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Video of people saying "I have Stiff Person Syndrome and I'm one in a million image
Video of people saying "I have Stiff Person Syndrome and I'm one in a million

Video of people saying "I have Stiff Person Syndrome and I'm one in a million

24 Oct 2018 - 24 Oct 2019 - Wordwide

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