Worldwide

Events

The Challenge
Melbourne to Sydney

Virtual fundraising challenge in sports routine or fitness routine to fundraise for Ataxia, ataxia research and climate change. Based on… Continue reading The Challenge

Rare Disease Day – Second Life
Global event

For the first time, we are going to do a charity event for Rare Disease Day in the online virtual… Continue reading Rare Disease Day – Second Life

3rd Annual GROW AWARENESS: VIRTUAL SHARE-A-THON
WORLDWIDE

February 28th, 2021 is Rare Disease Day. Our group, RARE, will be hosting a 24 hour share-a-thon on the Clubhouse… Continue reading 3rd Annual GROW AWARENESS: VIRTUAL SHARE-A-THON

Adisen Estudio 2021
Online

On the occasion of the activities organized to commemorate Rare Disease Day, Adisen, the National Association of Addison and Other Endocrine… Continue reading Adisen Estudio 2021

IV Concurso de Relatos Cortos
Online

IV Concurso de Relatos Cortos sobre Enfermedades Raras “Mi Experiencia Personal con la ER” Bases: https://www.adisen.es/noticias-y-actividades/iv-concurso-de-relatos-cortos-sobre-enfermedades-raras-mi-experiencia-personal-con-la-er-2/ Pueden participar personas afectadas… Continue reading IV Concurso de Relatos Cortos

Rare Disease Day 2021
Zoom

Join the McGill medicine rare disease interest group (RareDIG) on March 6th at 6PM EST for their third edition of… Continue reading Rare Disease Day 2021

Rare Disease Day 2021
Virtual

We shall be holding a virtual event on 27th February, 2021 at 10.00am Theme: Rare in a Covid World Kindly… Continue reading Rare Disease Day 2021

FEMEXEResillient Carousel
(Online)

#FEMEXEResillient Carousel of videos of the allied associations of FEMEXER (from February 25 to 28, 24 hours a day on… Continue reading FEMEXEResillient Carousel

FEMEXEResiliente
(Online)

Webinar about resilient organizations, and within this framework we will share what the experience of 2020 was like and the… Continue reading FEMEXEResiliente

Other Friends

Rare Diseases International

Country Organiser

Jordan’s Guardian Angels

Country Organiser