Indonesia participated in Rare Disease Day for the first time in 2016! They held an event which included a blood drive and a consultation corner for patients and family. For Rare Disease Day 2017, an awareness-raising campaign called “Infinite Hope: A Tribute to Rare Warriors” collected testimonies from the parents of children living with a rare disease and published them on social media.

2020 saw a Rare Disease Day roadshow and March taking place in Jakarta, Depok and Malang with photo sessions, a photo campaign and interactive talk shows. 

Do you know of any events not listed here? Or would you like to get involved? Email us at [email protected]


SpectacuRARE Fest 2023
Virtual, Jabodetabek

Reaching Everyone Everywhere

We are going to have 2 event for Rare Disease Day 2021  1. “Illuminates Building For Indonesia’s Rare Disease Day… Continue reading Reaching Everyone Everywhere

SpectacuRARE Fest 2021

SpectacuRARE Fest 2021 is an online event. We will talk about “Living with a Rare Disease” on zoominar, IG live,… Continue reading SpectacuRARE Fest 2021

Other Friends

Indonesia CARE for RARE Diseases

Country Organiser
Wynanda Bagiyo Saputri