Organisation

Gli Equilibristi HIBM
City :
Phone :
Contact
Event organised
Italy

Gli Equilibristi HIBM City: Phone :

-to raise awareness of the GNE Myopathy, promoting the understanding of this rare genetic disease;

- promote the hope of therapy and treatment by raising awareness among general practitioners to make them more aware of this pathology and the problems arising from it;

- promote the physiotherapeutic and psychological approach, and prevention with early genetic testing.

- encourage the dissemination of all information useful to improve the living conditions of patients;

- defend the interests of patients, also by claiming, based on art. 32 of the Italian Constitution, recognition of their rights, by the National Health Service.

- sensitize public opinion, public authorities and all institutions, nationally or internationally.


http://www.gliequilibristi-hibm.org/
Share this
Organisations in Italy: