Organisation

MiaThrives

City :

Minesing

Phone :

Event organised

Canada

MiaThrives City: Minesing Phone :

Helping Families Affected By Epidermolysis Bullosa (EB)

http://www.miathrives.ca

Organisations in Canada:

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News

Meet Lubin

Lubin, aged 12, is from Juvisy, France and is living with spinal muscular atrophy (SMA) which affects 1-9 in 100,000 people. Diagnostic Journey Around the age of one, Lubin’s parents noticed that ...

13 Feb 2020

Meet KP

Kin Ping is living with retinitis pigmentosa. He was diagnosed as a teen after 10 years of visiting dozens of ophthalmologists. Retinitis pigmentosa symptoms include difficulty seeing at night and th...

17 Jan 2020