The Rare Disease Society of South Africa
City :
All of South Africa
Phone :
Event organised
South Africa

The Rare Disease Society of South Africa City: All of South Africa Phone : +27726236763

Rare Diseases South Africa fights to have rare diseases and congenital disorders recognised and treated.

By connecting patients, families and patient groups, as well as by bringing together all stakeholders and mobilising the South African rare disease and genetics community, Rare Diseases South Africa strengthens the patient voice and shapes research, policies and patient services.

Improving quality of life takes advocacy, support for research and medicine development, facilitating networking amongst patient groups and caregivers, raising general awareness with key stakeholders and the broader community and providing a platform for key discussions when it comes to inclusive healthcare
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