Organisation

Associazione Nazionale Atassia Telangiectasia Onlus
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Italy

Associazione Nazionale Atassia Telangiectasia Onlus City: Phone :

The National Ataxia Telangiectasia Association (ANAT) was created for the research, prevention and treatment of Ataxia Telangiectasia (A-T), a rare genetic disease which affects children, causing progressive disability and immune deficiencies that put in danger their lives.

The association, initially called “Davide De Marini”, was founded in 1994 in Fano by David’s father, Alfredo, who is at present its Honorary President.

In 2016, the organization undertook a close and concrete collaboration with other Italian associations, such as “Gli Amici di Valentina” from Torino and “Noi per Lorenzo” from Verona, in order to create a national network among families, doctors and research centres and to join the efforts for supporting the researches in A-T.

The activity of re-organisation and renewal began at the end of 2016 and ended in 2017, when a new organization name was approved, the statute was changed and the Directory Board was re-elected. Eleven representatives of the families from the whole territory are now part of it.

ANAT is proud to have among the members of the Scientific Committee some of the most prestigious scientists in the field of A-T.


https://www.associazione-at.it/
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