Organisation

Instituto de Seguridad y Servicios Sociales de los Trabajadores del Estado

City :
Mérida, Yucatán
Phone :
+5219991212340
Contact
Event organised
Rare disease day 2018 video
Out now!
Official Rare Disease Day 2018 video!
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News
Today is Rare Disease Day!
Today is Rare Disease Day!
Today is Rare Disease Day 2018! With events happening in over 90 countries and regions across the world, together we can raise awareness to help further the rare disease cause. 5 new countries are pa...
28 Feb 2018
Meet Mirina
Meet Mirina
Mirina stars in the Rare Disease Day 2018 official video and is living with Ehlers-Danlos syndrome. She was diagnosed at the age of 4 and has been living with the rare connective tissue disease from b...
09 Feb 2018
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