CSF Leak Association
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United Kingdom

CSF Leak Association City: UK-wide Phone :

The CSF Leak Association is a Scottish Charitable Incorporated Organisation and registered charity working across the UK to raise awareness of cerebrospinal fluid (CSF) leaks and intracranial hypotension, tp support sufferers with information and advice, and to secure clear and consistent treatment pathways within all healthcare sectors. 

A CSF leak is a serious and often incapacitating medical condition stemming from a tear or hole in the membrane that contains the fluid surrounding the spinal cord and brain. It can occur in the head or spine as result of trauma, surgery, an underlying disorder or spontaneously. Spontaneous leaks alone affect 5 in 100,000 people each year.

When fluid leaks out, cranial pressure and volume reduces which allows the brain to sag within the skull. As a result of this ‘brain sag’, sufferers often experience severe headache, pressure, visual disturbances, hearing impairment, tinnitus, spasms, seizures and a wide range of other symptoms.

#CSFleak #IntracranialHypotension #Headache #RareDisease
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