Organisation

Helen DeVos Children's Hospital

City :
Grand Rapids
Phone :
+16163912700
Contact
Event organised
United States

Helen DeVos Children's Hospital City: Grand Rapids Phone : +16163912700

Rare disease impacts West Michigan and the world. A disease is rare when it affects less than 200,000 Americans at any one time. Many are genetic and some remain undiagnosed. Being touched by a rare disease can feel isolating as there is often little information available about these conditions. Please join us for an informal gathering featuring a panel discussion of parents of children with rare diseases as we aim to raise awareness and bring hope and encouragement to patients and families affected by rare diseases.


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