Organisation

Office for Rare Conditions
City :
Glasgow
Phone :
+441414515899
Contact
Event organised
United Kingdom

Office for Rare Conditions City: Glasgow Phone : +441414515899

Based at the Royal Hospital for Children & the Queen Elizabeth University Hospital in Glasgow, the Office for Rare Conditions aims to improve the quality of life for children and adults living with a rare condition.

Our objectives are:

- to increase awareness of rare conditions amongst health care staff looking after patients who attend the Royal Hospital for Children and Queen Elizabeth University Hospital, Glasgow.

- to enhance the support available to children and their families/carers.

- to promote standards of clinical care for affected children and adults.

- to increase the participation of people with rare conditions in multi-centre research.

Working with health care professionals in Glasgow, we assist clinical services to provide information events for patients and families, help to develop a strong network of patient support organisations for people living with rare conditions and provide information on rare condition research and clinical trials.


http://www.officeforrareconditions.org
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