Rare Disease Ghana Initiative City: Accra Phone : +233552716011
Rare Disease Ghana Initiative is the National Alliance Non-Governmental Organization in Ghana leading advocacy, serving as the voice and coordinating care for undiagnosed and rare diseases in Ghana. Rare Disease Ghana Initiative (RDGI) made up of a network of professionals, patients, caregivers and organizations whose aim is to develop, seek wide endorsement and to advocate for the implementation of a plan to support research, education, service development and seek support for individuals and families affected by undiagnosed, genetic and rare diseases in Ghana.
Rare Disease Ghana Initiative brings together rare disease patients, caregivers, support groups, charitable and non-profit organizations, health organizations, clinical experts, researchers and industry partners to take action on rare disease in Ghana and in collaboration with international alliances. Rare Disease Ghana Initiative provides a platform for addressing the gaps in the entire continuum of rare disease management from increased knowledge and awareness to early diagnosis and prevention to the best to best practice treatment and care to community engagement to access to best treatments and comprehensive research.