Organisation

UNSED (Union Nationale des Syndromes d'Ehlers-Danlos)

City :

Phone :

Event organised

France

UNSED (Union Nationale des Syndromes d'Ehlers-Danlos) City: Phone :

Congrès à Paris prévu le 9 février à l'Institut Imagine de Necker

http://www.unsed.org

Download materials

News

Reframe Rare for Rare Disease Day 2020

Reframe Rare for Rare Disease Day 2020

When the challenge of raising awareness for people affected by a rare disease still loomsOn Rare Disease Day we must re-double our effortsRe-think, re-envision, reimagineReframe what it means to be 'r...

30 Sep 2019

Thank you to all who took part in Rare Disease Day 2019

Thank you to all who took part in Rare Disease Day 2019

We have come a long way from the first Rare Disease Day which took place over a decade ago in 2008 when 18 countries took part. This year, Rare Disease Day was celebrated by patient groups, policy-mak...

14 Mar 2019