Organisation

Asociatia pentru Huntington din Romania

City :
Cluj-Napoca
Phone :
Contact
Event organised
Romania

Asociatia pentru Huntington din Romania City: Cluj-Napoca Phone :

Online: We will have an online raising awareness campaign. In the days before rare disease day we will be posting on Facebook information about rare disease, Huntington’s disease, genetic counselling, information about other services, centres and associations across the city and the country which help people affected by rare disease. We will invite other health associations and charity organization to share the information and raise awareness with us. We will also use social media to promote our offline event.

Offline: On the date of 27th February, we will host an open lecture to talk about: What are rare diseases and why do we have a rare disease day; What is Huntington’s disease, Huntington’s disease research news, and the launching of National Registry for Huntington’s Disease.


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