Hunter Medical Research Institute

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Living with a rare disorder: Not such a rare experience To mark Rare Disease Day 2017, HMRI and the Priority Research Centre GrowUpWell host the HMRI Rare Diseases Public Seminar, Tuesday 28 February. Speakers and topics: Dr Tracy Dudding-Byth | Matching faces: How using computer vision can help diagnosis of children with undiagnosed intellectual disability Miss Jane Goodwin | A different but not so rare parenting journey: Exploring parents’ experiences of having a child with a rare disorder Dr Aniruddh V. Deshpande | Surgeons and rare diseases in Newborn Children: Where we are and where we want to be Dr Elizabeth Kepreotes | Rare disorders and advocacy in Australia today

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