Organisation

Klippel-Feil Syndrome Freedom
City :
Your area & on social media
Phone :
Contact
Event organised
United States

Klippel-Feil Syndrome Freedom City: Your area & on social media Phone :

Klippel-Feil Syndrome Freedom empowers and unites patients and their families through peer support, education, research, and advocacy, for a lifetime of improved health care.

We have activities and ways to get involved for Rare Disease Day 2019, click here!  Participate in the #ShowYourKFStripes Challenge!  Or click here, for our full list of ideas.

Klippel-Feil syndrome is an often misunderstaood rare, congenital, degenerative, musculoskeletal condition, that affects the cervical spine. Additionally, KFS can be painful, and may affect many organs and systems in the body.

Thank you!

Klippel-Feil Syndrome Freedom 

 

 


https://www.facebook.com/KlippelFeilSyndromeFreedom/
Share this
Organisations in United States: