PURA Syndrome Foundation
City :
Global Foundation, registered in USA
Phone :
Event organised
United States

PURA Syndrome Foundation City: Global Foundation, registered in USA Phone :

It is in coming together that we find the strength to endure the hardships, learn about the wonder of others and create a place to celebrate success. 

Together we are Family.

The PURA Syndrome Foundation is a global not-for-profit organization. Our mission is to serve, educate and fund research for families coping with the effects of PURA Syndrome.  Foundation, families, clinicians and researchers together as one community.
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