City :
San Francisco
Phone :
Event organised
United States

Myotonic City: San Francisco Phone : +14158007777

Myotonic is the world's largest patient organization focused solely on myotonic dystrophy. Our mission is to enhance the quality of life of people living with myotonic dystrophy (DM) and advance research focused on treatments and a cure.

Myotonic provides emotional support, education and resources to affected individuals and their families, and conducts outreach to raise awareness about DM in the medical community and the general population.

Myotonic is committed to advancing research and therapies.

Myotonic advocates for legislation, research, and infrastructure initiatives that will advance our understanding of myotonic dystrophy, accelerate drug development, and improve diagnosis and care. We strive to raise visibility of myotonic dystrophy and people living with DM with key stakeholders in Congress, federal and state agencies, medical professionals, and the media
Share this
Organisations in United States: