Organisation

Association for patients Rett syndrome

City :
Kazan
Phone :
+79872974440
Contact
Event organised
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News
100 days until Rare Disease Day 2020!
100 days until Rare Disease Day 2020!
The countdown has begun for the 13th edition of Rare Disease Day! Rare Disease Day will take place on 29 of February 2020, the rarest day of the year. The campaign is open to everyone to get involved ...
21 Nov 2019
Reframe Rare for Rare Disease Day 2020
Reframe Rare for Rare Disease Day 2020
When the challenge of raising awareness for people affected by a rare disease still loomsOn Rare Disease Day we must re-double our effortsRe-think, re-envision, reimagineReframe what it means to be 'r...
30 Sep 2019
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