Organisation

Téa Lake and the Rare Disease Association
City :
Perth WA
Phone :
+61434235450
Contact
Event organised
Australia

Téa Lake and the Rare Disease Association City: Perth WA Phone : +61434235450

Téa Lake was born with a rare disease called “Microcephaly-capillary malformation syndrome”.
It took a entire year of invasive and painful procedures before a diagnosis of the disease could be made.

We recently established The Téa Lake Rare Diseases Fund with the Telethon Kids Institute, to help with research into the causes behind and treatments for these rare conditions.

With your generosity and support, together we can make a difference.

The mission is to fund the research and support for children with rare diseases and genetic disorders.


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