Organisation

Alliance for Cryoglobulinemia
City :
Haddonfield, NJ
Phone :
+19153157273
Contact
Event organised
United States

Alliance for Cryoglobulinemia City: Haddonfield, NJ Phone : +19153157273

The Alliance For Cryoglobulinemia is an inclusive network of patients, caregivers, family, medical professional and Cryoglobulinemia Ambassadors dedicated to improving the quality of life for people with cryoglobulinemia. Our goal is to act as an international platform that links all efforts of cryoglobulinemia research, awareness, patient support and education. We utilize Medical Advisors and Partner organizations to provide quality information via our website and social media.  We offer an international support group via RareConnect and a peer to peer support group. The Alliance for Cryo is entirely funded by and comprised of volunteers who generously share their talents, skills and knowledge.  The Alliance for Cryo campaigns for research and partners with patient centered research organizations such as  The Vasculitis – Patient Powered Research Network and The Vasculitis Clinical Research Consortium.  In keeping with our research goal Alliance for Cryoglobulinemia has established a Cryoglobulinemia Research Fund at our partner organization The Vasculitis Foundation.

The Alliance was founded by Marianne Vennitti and Eileen Propp, in 2012.

 


http://allianceforcryo.org/
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