Organisation

City :

Phone :

Event organised

France

La Famille Kiroul City: Phone :

Original since 2000 !

Let's take a journey together to break the borders of isolation !

http://lafamillekiroul.blogs.afm-telethon.fr

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News

100 days until Rare Disease Day 2020!

100 days until Rare Disease Day 2020!

The countdown has begun for the 13th edition of Rare Disease Day! Rare Disease Day will take place on 29 of February 2020, the rarest day of the year. The campaign is open to everyone to get involved ...

21 Nov 2019

Reframe Rare for Rare Disease Day 2020

Reframe Rare for Rare Disease Day 2020

When the challenge of raising awareness for people affected by a rare disease still loomsOn Rare Disease Day we must re-double our effortsRe-think, re-envision, reimagineReframe what it means to be 'r...

30 Sep 2019