Organisation

City :

Phone :

Event organised

France

La Famille Kiroul City: Phone :

Original since 2000 !

Let's take a journey together to break the borders of isolation !

http://lafamillekiroul.blogs.afm-telethon.fr

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News

Watch new patient videos for Rare Disease Day 2019

Watch new patient videos for Rare Disease Day 2019

Rare Disease Day 2019 puts rare disease patient stories in the spotlight. This year’s campaign brings together three testimonial videos that tell the stories of Filip, Karlo and Lorena and their exper...

08 Feb 2019

Video out now - #ShowYourRare for Rare Disease Day 2019

Video out now - #ShowYourRare for Rare Disease Day 2019

Watch the #ShowYourRare 2019 video to get inspired to paint your face and Show Your Rare during the month of February for Rare Disease Day 2019.It’s simple to take part! Paint your face using br...

01 Feb 2019