Organisation

City :

Phone :

Event organised

France

La Famille Kiroul City: Phone :

Original since 2000 !

Let's take a journey together to break the borders of isolation !

http://lafamillekiroul.blogs.afm-telethon.fr

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Thank you to all who took part in Rare Disease Day 2019

Thank you to all who took part in Rare Disease Day 2019

We have come a long way from the first Rare Disease Day which took place over a decade ago in 2008 when 18 countries took part. This year, Rare Disease Day was celebrated by patient groups, policy-mak...

14 Mar 2019

Today is Rare Disease Day 2019

Today is Rare Disease Day 2019

Today on Rare Disease Day 2019 the worldwide rare disease community is joining together to raise awareness of rare diseases by holding events, conferences and fundraisers. Thousands of Rare Disease Da...

28 Feb 2019