ACHSE e. V. Allianz Chronischer Seltener Erkrankungen City: Berlin Phone : +4930330070826
Dear guests of the Rare Disease Day,
People with rare diseases bear a difficult fate: the route to diagnosis is often a long and tiring odyssey, therapies and informations about the diseases are scarce.
Rare Disease Day is celebrated on the last day of February in almost 70 countries worldwide. More than ten cities in Germany will participate with different activities promoting this year's slogan “Together for a better care” to inform and sensitize for the needs of affected people.
The Rare Disease Day brings hope and comfort - to experience that one is “not ALONE”, can make life with a rare disease much easier, because people find support and understanding on common ground.
As the Patroness of ACHSE I am so proud about this development and send best wishes for a successful, well-attended and happy Rare Disease Day 2014.
Eva Luise Köhler Former first lady of Germany and Patroness of ACHSE