Advocacy for Neuroacanthocytosis Patients
City :
Phone :
Event organised
United Kingdom

Advocacy for Neuroacanthocytosis Patients City: Phone : +442079372938

The NA Advocacy is dedicated to bringing together clinicians,  researchers, patients, families, friends and research sponsors to strive for relief for patients of the formsof neuroacanthocytosis, a rare disease affecting the brain.

              Our goals are to:

                         * Assist patients and their families

                         * Promote international collaboration

                         * Encourage cross fertilization of knowledge

                         * Fund research

                         * Establish a virtual database
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