Bin Adam Foundation City: Rawalpindi, Islamabad, Gujar Khan, Fateh Jang Phone : +923455882293
Rare Disease Day is being clelebrating in Pakistan since 2012, we are happy that we approach it first and organized first event on 2012 in Pakistan and know what is Rare Disease and Rare Disease Day, people now know much about so many Rare Diseases in Pakistan especially ATAXIA by Bin Adam Foundation.
We are entring in next decade, we support ‘Reframe Rare’ – reframing what it means to be ‘rare’ to show that rare is many, rare is strong, rare is proud!.
The aim of Bin Adam Foundation is to empower people of all ages in Pakistan especially by providing them with literacy, education and awareness programs to create better health in Rare Disease especially "ATAXIA".
Although there is currently no medical cure or medicine for this kind of rare disease, we aim to increase research in Pakistan to the level of other countries such as the UK, USA and India.
The genetics lab in Pakistan needs a genetics and an Ataxian specialist. Genetic testing is the most expensive testing in the world and is currently only conducted in the UK, USA and India.
Please joind hand with us, help and support make zero Rare Disease.
For more information kindly join my www.facebook.com/binadamfoundation , www.binadam.net
Message from Ataxian Haji Babar Naseer, Chairman Bin Adam Foundation for Ataxia.Pakistan.
Cell/Whatsapp: +92 345 5882293