Organisation

The FPIES Foundation
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Event organised
United States

The FPIES Foundation City: Phone :

We are not alone. Here at The FPIES Foundation that is something we feel every parent and caretaker should realize. Not only are there other families dealing with the same challenges FPIES poses, but if you add in other families also dealing with a rare disease the numbers are staggering. Our diseases are different, but many of our struggles are the same and together our voices are strong and clear. Rare Diseases Day is a great way to let decision-makers know about the challenges and impact facing a family dealing with a rare disease like FPIES.

So, just how can you join with The FPIES Foundation to get involved?

Download and display RDD logos

Join Hands

Show support in Social Media

Tell your story

Involve Your Local Media

Follow us on social media and our blog for more information!


http://www.thefpiesfoundation.org
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