Organisation

Russian Association of Rare Diseases
City :
Moscow
Phone :
+79163138153
Contact
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Watch new patient videos for Rare Disease Day 2019
Watch new patient videos for Rare Disease Day 2019
Rare Disease Day 2019 puts rare disease patient stories in the spotlight. This year’s campaign brings together three testimonial videos that tell the stories of Filip, Karlo and Lorena and their exper...
08 Feb 2019
Video out now - #ShowYourRare for Rare Disease Day 2019
Video out now - #ShowYourRare for Rare Disease Day 2019
Watch the #ShowYourRare 2019 video to get inspired to paint your face and Show Your Rare during the month of February for Rare Disease Day 2019.It’s simple to take part! Paint your face using br...
01 Feb 2019
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