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National Association of Patients with Rare Diseases '"GENETICA"
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How sport can be a valuable therapy for rare diseases
How sport can be a valuable therapy for rare diseases
For Charlotte from the UK, who has a rare genetic disorder called Osteogenesis imperfecta, sport has been a really important part of her coping mechanism. Her condition means her bones are brittle, pu...
22 Dec 2020
Meet our heroes!
Meet our heroes!
6 continents, 6 portraits, 6 heroes, 6 lives. Rare Disease Day shines a light on the global and diverse community of over 300 million people - men, women and children, adolescents, young-adults, adult...
28 Nov 2020
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