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National Association of Patients with Rare Diseases '"GENETICA"
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The power of art – painting a brighter future for people living with a rare disease
The power of art – painting a brighter future for people living with a rare disease
Art events are powerful tools to raise awareness for people living with a rare disease. This year Rare Disease Day saw a wide variety of art events around the world engaging all members of the communi...
19 May 2020
World landmarks shining a light for Rare Disease Day – individual and local efforts send a global message!
World landmarks shining a light for Rare Disease Day – individual and local efforts send a global message!
A real highlight from Rare Disease Day this year was seeing the spectacular sight of buildings and monuments lighting up to raise awareness. From well-known landmarks such as the Colosseum and the wor...
09 Apr 2020
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