Organisation

National Association of Patients with Rare Diseases '"GENETICA"
City :
Phone :
Contact
Event organised
Download materials
News
Many, Strong, Proud: Connecting Rare Disease Day Across Continents
Many, Strong, Proud: Connecting Rare Disease Day Across Continents
The rare disease community and its supporters come together to share the message: Rare is many. Rare is strong. Rare is proud!Today, 28 February, is Rare Disease Day; the day dedicated to raising awar...
27 Feb 2021
Out Now! Rare Disease Day 2021 video is here!
Out Now! Rare Disease Day 2021 video is here!
The official Rare Disease Day 2021 video launches today and is already available in 36 languages, kicking off the international patient-led movement that puts rare diseases in the spotlight.6 continen...
05 Feb 2021
Read all news