Organisation

SCN2A Awareness
City :
Phone :
+61408323863
Contact
Event organised
Australia

SCN2A Awareness City: Phone : +61408323863

We are parents of children who have SCN2A. Although our children have all had varying journeys, they are affected by SCN2A a devastating genetic mutation that causes death and severe disability for many children. We are dedicated to helping to develop treatments for SCN2A and developmental and epileptic encephalopathies (DEEs) and helping those working on and affected by DEEs better understand the conditions and live better lives.

We work with families, researchers, clinicians and professional bodies to improve the lives of those who have SCN2A and their families. 


https://scn2aaustralia.org/
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