29 Februaryis Rare Disease Day

Raising awareness and generating change for the 300 million people worldwide living with a rare disease, their families and carers.

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people with rare diseases


events worldwide


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Join the community. Help us build awareness. Share your photos, videos and experiences!

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If you can help your child you can help others

When my son was diagnosed as thalassaemia patient, doctors told me that he will not live for more than 10 years, and there was no… Continue reading If you can help your child you can help others

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Glanzmann Thrombasthenia

Raymundo and Damián are 8 and 7 years old, both of them suffer a bleeding disorder called glanzmann’s thrombasthenia, its a 1 and a million… Continue reading Glanzmann Thrombasthenia

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una cura, una ilusión

Natalia cuando era una bebé de 8 meses tuvo su primera convulsión, fue una convulsión tan larga que terminó en un paro cardio-respiratorio los médicos… Continue reading una cura, una ilusión

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What's your story?

Be part of Rare Disease Day by sharing your story with others and sending a message of solidarity!

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Thousands of events
in over 100countries

Every year, thousands of events are
organised across the world.

In the news

In the run up to Rare Disease Day 2023 on 31 January at 5.30 CET, we hosted a webinar with guest speakers and medical experts… Continue reading Webinar: How to Raise Awareness Among Healthcare Providers

Today is Rare Disease Day! We are inviting everyone to share their colours and raise awareness for the 300 million people living with a rare… Continue reading Press Release: Mark Rare Disease Day 2023

20 November was the launch of the official #RareDiseaseDay 2023 video in over 40 languages! This 20-second video kicks off the international patient-led campaign and… Continue reading Official 2023 Global Video Launch

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