Teri, United States, January 16, 2014
For two years our lives have been anything but normal. We fought and advocated for our child since the day she was born. After countless hours spent in doctors offices, hospitals, and therapy sessio...
Jan, Slovenia, January 15, 2014
Hello! I am Jan. I am 19 years old. I live in Slovenia (Ljubljana). I have had TPN from birth 20 hours per day. I want to get some friends from K.i.s.E.e.V. I am buying new pump at the moment. I would...
Safia, Ehlers-Danlos syndrome, Hereditary Angioedema, Brazil, February 22, 2018
Safia is 14 years old and in 2016 she started to have a lot of health problems: unexpected, frequently and constant bleeding, severe abdominal pain, Pulmonary Atelectasis, skin swelling, allergic reac...
Leanne, Vasculitis, United Kingdom, February 21, 2018
I was diegnosed pretty quickly with vasculitis, and then Lupus also about a year later. My mum has Vasculitis and scleroderma so when i started to loose the feeling on my left side, felt weak and tire...
