Tell your story!

Share your photos, videos and your experiences!

Be part of Rare Disease Day by sharing your story with others and sending a message of solidarity! You can write about your story and also submit photos or a video testimonial.
Reza Reza

I am Reza

Reza, Cystinosis, Iran, February 9, 2021

My name is Reza, I am a 13-year-old living with Cystinosis, in Iran with my family.I love going to the cinema, watching movies and reading books. I am also very fond of singing and dancing and really ...


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(To find the english name and more information about your disease, click here). Start typing the English name of your disease. Please choose from the suggestions that appear. If your disease is undiagnosed please write ‘undiagnosed’, or if you would like to list multiple diseases, please type in a list separated by commas.