Rare disease day 2022

Event Summary

For the 15th edition of Rare Disease Day, more than 100 countries and regions joined their voices, organizing more than 600 different kinds of events all around the world.
This year’s campaign saw 5 new National Alliance partners: Ivory Coast, Kenya, Greece, Kazakhstan and Portugal.
More than 650 buildings were illuminated for this year’s global chain of lights, displaying support for Rare Disease Day, raising awareness for people living with a rare disease, and spreading hope and color all around the world.

The 2022 official video was available in 45 different languages. The website features the portraits of

By sharing these stories from 6 different continents and of 16 different diseases, the Rare Disease Day website shone a light on the diversity of our global community.

School toolkits and Lesson Plans were translated in more than 20 languages and downloaded in all the continents. 

Media Coverage

Rare Disease Day was reported from all around the world as participants raised their voices to share the message: ‘Share your colours!’

Social Media highlight

A successful series of webinars were held to provide information and support throughout the campaign, being translated into 8 languages and receiving over 10 000 views on Facebook. The Rare Disease Day Facebook page reached over 900 000 people, and Instagram followers doubled since 2021.
The Rare Disease Digital Materials were downloaded 66% more than 2021.

Share your colours

Join the community. Help us build awareness. Share your photos, videos and experiences!