EURORDIS Rare Disease Day Event: Registration open!

Registration is now open!

Rare Disease Day 2015   
Rare but Real: Talking Rare Diseases

EURORDIS Policy Event
24 February 2015, 10.30 – 13.00
Residence Palace, 155, rue de la Loi (Wetstraat), 1040 Brussels

To mark Rare Disease Day 2015, EURORDIS invites you to join people living with a rare disease and policy makers at a unique face-to-face discussion event, which will include contributions from patients who have had a ‘Rare but Real’ game-changing influence on policy.

The event is open to the public – please register here.

If you are unable to attend in Brussels you can also watch a live stream video of the event online and participate in the discussion by submitting questions at

Online participants can also take part in the discussion by submitting questions via Twitter using #RareEU2015. Any questions that you tweet with this hashtag will be displayed next to the live video stream.

The event is organised in cooperation with Radiorg, the Belgian National Alliance of rare disease patient organisations, and with in-kind support from Burson-Marsteller Brussels.

View the agenda

Register to attend the event in Brussels