Rare Disease Day 2015
Rare but Real: Talking Rare Diseases
EURORDIS Policy Event
24 February 2015, 10.30 – 13.00
Residence Palace, 155, rue de la Loi (Wetstraat), 1040 Brussels
To mark Rare Disease Day 2015, EURORDIS invites you to join people living with a rare disease and policy makers at a unique face-to-face discussion event, which will include contributions from patients who have had a ‘Rare but Real’ game-changing influence on policy.
The event is open to the public – please register here.
If you are unable to attend in Brussels you can also watch a live stream video of the event online and participate in the discussion by submitting questions at eurordis.org/rareeu2015.
Online participants can also take part in the discussion by submitting questions via Twitter using #RareEU2015. Any questions that you tweet with this hashtag will be displayed next to the live video stream.