News

56 Rare Disease Day news
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Karlo, 30 years old, and his younger sister are the stars of one of the upcoming Rare Disease Day 2019 videos.He is from Zagreb, Croatia and is living with the rare disease neurofibromatosis type 1. T...
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Lorena from Madrid, Spain is the star of one of the Rare Disease Day 2019 patient testimonial videos (coming soon!). She lives with Phelan-McDermid syndrome, a disease linked to chromosome 22q13 that ...
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Download the official Rare Disease Day 2019 poster to display at your events, workplace or home and raise awareness of the impact of rare diseases in your community. The Rare Disease Day poster is ava...
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Filip, aged 8, is the youngest person to feature in the Rare Disease Day 2019 testimonial videos.He is from Bucharest, Romania and lives with the rare disease achondroplasia, which affects 1-9 in 100 ...
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The countdown to Rare Disease Day 2019 has officially begun. The 12th edition of Rare Disease Day will take place on 28 February 2019. The day will see members of the rare disease community from patie...
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Rare Disease Day 2019 theme announced: Bridging health and social care The theme for Rare Disease Day 2019 is 'Bridging health and social care'. For most people living with a rare disease, as well...
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Launched in 2018, #ShowYourRare is the interactive social media campaign for Rare Disease Day.Anyone around the world can get involved by painting their face and sharing a selfie on social media using...
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Today is Rare Disease Day 2018! With events happening in over 90 countries and regions across the world, together we can raise awareness to help further the rare disease cause. 5 new countries are ...
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Mirina stars in the Rare Disease Day 2018 official video and is living with Ehlers-Danlos syndrome. She was diagnosed at the age of 4 and has been living with the rare connective tissue disease from b...
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EURORDIS is very pleased to announce that Sean Hepburn Ferrer, the eldest son of the late actress and humanitarian, Audrey Hepburn, is Rare Disease Day 2018 Ambassador. Sean Hepburn Ferrer was the pre...